Thank you for taking the time to complete this survey, which should take around 10 minutes. This survey is part of a broader project led by the Research and Innovation team at Kent and Medway Mental Health NHS Trust (formerly KMPT). Its aim is to explore the approaches used with participants to help them feel empowered, build trust in staff and feel safe and in control of their involvement.
Participation is voluntary and responses are anonymous. If you have any questions about the survey, please contact:
Alison.welfare-wilson@nhs.net
1. Name of NHS Trust
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3. What specialities you deliver to? e.g. rheumatology, dementias, cancer, etc
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The following 13 questions are divided into sections to help us better understand the differing approaches which are used to promote safety, trust, empowerment and choice for individuals participating in NHS research delivery.
Section 1: Participant support
5. When participants appear anxious or distressed during procedures (e.g. blood tests, scans, swabs) what steps do you take to support them?
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6. Are there any strategies your team uses to help participants feel more comfortable or safe during semi-invasive procedures?
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7. How do you assess whether a participant may need additional emotional support before, during or after a study procedure?
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8. Can you describe any adjustments or accommodations you’ve made for participants who found certain procedures difficult?
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Section 2: Communication and Trust
9. What approaches do you use to explain procedures in a way that helps participants feel informed and reassured?
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10. What feedback have you received from participants about how supported or safe they felt during their involvement in research?
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Section 3: Managing Difficult Situations
12. Have you ever had to pause or adapt a procedure due to a participant’s emotional response? If so, how was this handled?
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Section 4: Staff Preparedness and Training
Section 5: Creating a Supportive Environment
15. What does a “safe and supportive” research environment look like to you?
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